Facioscapulohumeral Muscular Dystrophy- UK Patient Registry for FSHD
UK Patient Registry for FSHD. UK FSHD Patient Registry. To help advance the research and development of treatment, therapies and care for all those diagnosed with FSHD. More information for particpants and their families. More infomormation for professional users. There are currently 885 patients registered in this database. The registry is funded by Muscular Dystrophy UK. With support from the John Walton Muscular Dystrophy Research Centre. And MRC Centre for Neuromuscular Disease.
OVERVIEW
This domain fshd-registry.org currently has a traffic classification of zero (the lower the more traffic). We have sifted seven pages within the domain fshd-registry.org and found three websites referring to fshd-registry.org. We were able to note two contacts and directions for fshd-registry.org to help you communicate with them. This domain fshd-registry.org has been on the internet for five hundred and ninety-three weeks, eleven days, nine hours, and fifty-seven minutes.
Pages Analyzed
7Links to this site
3Contacts
2Locations
2Online Since
Feb 2013FSHD-REGISTRY.ORG RANKINGS
This domain fshd-registry.org has seen alternating quantities of traffic until the end of the year.
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FSHD-REGISTRY.ORG HISTORY
This domain fshd-registry.org was registered on February 23, 2013. It is currently five hundred and ninety-three weeks, eleven days, nine hours, and fifty-seven minutes young.
REGISTERED
February
2013
WEBSITE SPAN
11
YEARS
4
MONTHS
13
DAYS
LINKS TO WEB PAGE
WHAT DOES FSHD-REGISTRY.ORG LOOK LIKE?
CONTACTS
Klinikum der Universitaet Muenchen, MD-NET
Maggie Walter
Ziemssenstr. 1a
Muenchen, 80336
DE
Domainfactory GmbH
Hostmaster Domainfactory
Oskar-Messter-Str. 33
Ismaning, 85737
DE
FSHD-REGISTRY.ORG HOST
I discovered that the main root page on fshd-registry.org took one thousand and ninety-four milliseconds to load. Our web crawlers found a SSL certificate, so in conclusion our crawlers consider fshd-registry.org secure.
Load time
1.094 seconds
SSL
SECURE
Internet Address
138.245.2.144
NAME SERVERS
ns2.namespace4you.com
ns.namespace4you.com
FAVORITE ICON
PAGE TITLE
Facioscapulohumeral Muscular Dystrophy- UK Patient Registry for FSHDDESCRIPTION
UK Patient Registry for FSHD. UK FSHD Patient Registry. To help advance the research and development of treatment, therapies and care for all those diagnosed with FSHD. More information for particpants and their families. More infomormation for professional users. There are currently 885 patients registered in this database. The registry is funded by Muscular Dystrophy UK. With support from the John Walton Muscular Dystrophy Research Centre. And MRC Centre for Neuromuscular Disease.CONTENT
This domain fshd-registry.org had the following in the web site, "To help advance the research and development of treatment, therapies and care for all those diagnosed with FSHD." Our analyzers analyzed that the website stated " More information for particpants and their families." The Website also stated " More infomormation for professional users. There are currently 885 patients registered in this database. The registry is funded by Muscular Dystrophy UK. With support from the John Walton Muscular Dystrophy Research Centre. And MRC Centre for Neuromuscular Disease."VIEW OTHER DOMAINS
Home - FSHD
A National Italian Registry for FSHD.